Hii welcome to our team
This is to raise awareness for not only epilepsy but also for Dravet Syndrome.Our family lives with Dravet Syndrome daily through our Boy Harry.
Harry has been suffering from seizures since the early age of 4months old and had been having them since.
He was diagnosed with Dravet Syndrome in 2017.
Now 2022, he is living his life as happy as he can be loved by his family. He is a happy and bubbily boy who loves cuddles and being carried despite his great height for a 7 year old.
A little info about Dravet Syndrome.
Dravet syndrome is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. Dravet syndrome has an estimated incidence rate of 1:15,700, with the majority of patients carrying a mutation in the sodium channel gene SCN1A.
Thank you to our Sponsors
$21
Marcus Lisa Colebrook
$211
Luckie Pattison
Supporting my baby brother
$11
Eleanor Harris
$53
Alex Waterson
$32
Terri
$21
Phuong Pattison
$21
Daniela Stillitano
Good luck with the fund raiser.
$21
Getting this kick started