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Epilepsy month/ purple day

By Desiree Payne

I am hosting a fundraiser to Make March Purple for epilepsy

Amelia had her first absence seizure when she was around five months old. She has absence, myoclonic and tonic clonic seizures, however she is now starting to experience more types including atonic, tonic and focal seizures, which have also resulted in drop attack seizures.
We have a strong family history of epilepsy; my mother, Amelia’s grandmother, had epilepsy and passed away from it in 2000. Also, her uncle as a child had epilepsy but grew out of it. For us it heartbreaking to see Amelia have epilepsy and we still get very upset when she has seizures.
Epilepsy not only impacts her but also her us, her siblings, her family, her daycare, and her friends. its at times made us question whether she can go stay at friends' places or if it's safe for her to play on playgrounds. It definitely at times taken her childhood.
Seizures are hard, but that's just the tip of the "epilepsy is just the tip of the iceberg." hopefully but raising funds and awareness we can help educate, even if it's just one person.
We encourage anyone that can help us to fundraise please do, if you cant please share this post. The more awareness the more the epilepsy community as well as anyone in the medical field can better help and understand this neurological illness.


Every 33 minutes a life is turned upside down by epilepsy.

I am raising funds for Epilepsy Queensland to ensure the epilepsy helpline can continue to answer every call for help. Did you know that up to 90% of Australians with epilepsy do not feel they have access to the support they need to live well with the condition? By supporting my fundraiser you will make a real difference.

Thank you!

epilepsy is a common neurological condition that affects approximately 50 million people globally.

Epilepsy can affect people of any age, sex, nationality, cultural or socio-economic background, level of intelligence or location. 

In a report prepared for Epilepsy Australia by Deloitte Access Economics “The economic burden of epilepsy in Australia 2019-2020”, there will be an estimated 142,740 people living with active (i.e. continuing seizures or with the need for treatment) epilepsy in Australia across 2019-2020.


Please help me to Make March Purple for epilepsy

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Epilepsy month/world purple day

Friday 3rd Feb

epilepsy is a common neurological condition that affects approximately 50 million people globally.

Epilepsy can affect people of any age, sex, nationality, cultural or socio-economic background, level of intelligence or location. 

In a report prepared for Epilepsy Australia by Deloitte Access Economics “The economic burden of epilepsy in Australia 2019-2020”, there will be an estimated 142,740 people living with active (i.e. continuing seizures or with the need for treatment) epilepsy in Australia across 2019-2020.

Amelia had her first absence seizure when she was around five months old. She has absence, myoclonic and tonic clonic seizures, however she is now starting to experience more types including atonic, tonic and focal seizures, which have also resulted in drop attack seizures.
We have a strong family history of epilepsy; my mother, Amelia’s grandmother, had epilepsy and passed away from it in 2000. Also, her uncle as a child had epilepsy but grew out of it. For us it heartbreaking to see Amelia have epilepsy and we still get very upset when she has seizures.
Epilepsy not only impacts her but also her us, her siblings, her family, her daycare, and her friends. its at times made us question whether she can go stay at friends' places or if it's safe for her to play on playgrounds. It definitely at times taken her childhood.
Seizures are hard, but that's just the tip of the "epilepsy is just the tip of the iceberg." hopefully but raising funds and awareness we can help educate, even if it's just one person.
We encourage anyone that can help us to fundraise please do, if you cant please share this post. The more awareness the more the epilepsy community as well as anyone in the medical field can better help and understand this neurological illness.

My Team Members